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Home. Finally Home

Emmett is definitely a trooper, fighter, warrior, champ, and everything else my social media has been calling him. Our tiny family of 4 definitely appreciates all the love, prayers, and support that you have given during this difficult time. 

I am having some extreme flashbacks of him on that first day, and a pain hits me in MY heart every time. This was by far the hardest thing I’ve had to do, and my tiny Em graduated the NICU! but this surgery was by far worse...

 I’ve had a couple nightmares of the surgeon opening up his chest: cutting his sternum to Expose his heart in order to do this repair. Ouch. Then, they wire him back up, and they leave the wires in there! I know technology has come a long way, and I think some of my Extended family doesn’t realize that this was in-fact- traditional open heart surgery. This wasn’t  a microscopic surgery. This was a risk, and Em pulled through. 

He will have this scar for the remainder of his life, and he will need additional surgeries in the future. This was just a “quick fix.” They want him to get bigger, gain more weight, and stronger to do an actual valve repair. Mind you, this surgery, the doctor has only performed 20 times! (21 now.) It’s rare. It’s rare. It’s rare. 

My surgeon decided to poke some holes in the valve to release the pressure that was building up from blood traveling the wrong way. What this means? Well, the holes can close up, and he would need more repairs. He still has a murmur. Em still has pressure. Em still isn’t fixed... yet. Once he is older, The valve that he would need is an experimental Melody valve. He would be on blood thinners for the remainder of his life. This was just a quick fix, but my baby is eating. My baby is better. My baby is home.

For now, he sleeps and stares at his puppy while many smiles are given to momma  (Lily is doing better as well- she has some sort of liver disease)


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