Pre-OP Consult


After 45 days in the NICU and about 200+ days home, Emmett is back in the ICU. Or, will be.

The surgery is scheduled for 7:30 tomorrow morning. We have to
Check in at 5:30am. I asked all the questions today. I did all the blood work, xrays, nurse talks, walk throughs, etc.

I was perfectly fine. I handled myself well. I only was feeling upset when talking to the nurse practitioner. She went through the nitty gritty details of face masks, hospital procedures, visitors, etc. She said she likes to sneak in the extra parent if she can, but other nurses are way more strict. We aren’t sure which one we will get, but hoping the latter.

Em was such a good boy today for not being able to nap. Every time he got super comfortable, he was switched to a new doctor, or lab test, or something. Poor guy.

Then, we got home and had our call with the geneticist. She definitely thinks he has a muscular problem, and em will be doing chromosome testing.he has a very strange shoulder blade that pops out, and doctor thinks it is some form of muscular dystrophy. Just another thing to add to the list. But first- heart surgery.



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